To learn more info about Fetal Alcohol Spectrum Disoder (FASD) please check out the following websites:
KnowFASD.ca — KnowFASD.ca is an interactive website that provides information across the spectrum and lifespan of individuals who have FASD. It summarizes some of the common neurobehavioral features from current research and explains some of the neurobehavioral difficulties. Not all individuals with FASD will experience all of the issues presented.
Because FASD is a spectrum disorder, life can be very difficult for each person. The site has an ages and stages interactive feature, as well as a wiki environment, that provides information on many of the life challenges individuals may face in areas such as health, education, life skills, housing, social relationships, employment, and mental health. Within the wiki environment, intervention options include: tips, resources, and links specific to each area of neurobehavioral challenge.
KnowFASD.ca was developed by CanFASD in conjunction with University of Alberta and Dr. Jacqueline Pei’s research team.
The Coach Approach: Supporting Families of Children with Disabilities — A coach or navigator approach is a new model that is now increasingly used in pediatric health care contexts. This webinar from the Canadian Association of Paediatric Health Centres will provide an overview of what a coach is and the current evidence that exists in the use of a coach for parents of children with disabilities.
Experiences of living with fetal alcohol spectrum disorders: a systematic review and synthesis of qualitative data — This study aims to identify and assess available evidence from qualitative studies exploring experiences of individuals living with fetal alcohol spectrum disorders (FASD) or those living with a child with FASD, as well as experiences of interventions aimed at supporting individuals with FASD and their families.
I Am a Caregiver! — Caregiver Resource Guide — This guide was developed as a way for caregivers to access important information and resources relating to providing care for children and adults with FASD.
Family Support for Children with Disabilities—This document was developed by the CanFASD Family Advisory Committee as a resource for family members looking for information about financial and other supports for their children. Some jurisdictions have more streamlined resources than others for children and/or adult children; this is a good starting place.
Caregiver Training—An updated Caregiver Curriculum on FASD was launched in June 2016. Now available are new, interactive modules which you can view right from your browser.
https://www.fasdoutreach.ca/ - The Provincial Outreach Program for Fetal Alcohol Spectrum Disorder (POPFASD) is funded by the British Columbia Ministry of Education and has been in existence since 2006. We are located in Prince George, British Columbia and hosted by School District No. 57. A multi-district Steering Committee offers advice, direction and feedback. The mandate of our program is to increase educators’ capacity to meet the learning needs of students with Fetal Alcohol Spectrum Disorder.
To learn more about Fetal Alcohol Spectrum Disorder (FASD) please check out our Facebook Page with up to date research, articles, and tips and tricks for individuals and families.